NEWSLETTERS

Newsletter Archive

If you would like paper copies of any of our newsletters please contact us at 1-855-323-6744. To subscribe electronically click on "CONTACT US" at the above navigation panel.

 

Issue 27 (Vol 5 Issue 27)- March 2016

  • Strategies to Locate Child/Respite Care Providers
  • Parent Training
  • News Around the State
  • Early Hearing Detection and Intervention
  • Need an Activity for your family Support Group or Special Education PTA?

 

 

  • News Around the State
  • Families Connecting
  • Transition Stories
  • Helping Families Connect, Find Strength, and Thrive!

 

  • News Around the State
  • Training for Oregon Families
  • Health Insurance Marketplace
  • What's New at the Oregon Family to Family Health Information Center?
  • New Resources for Parents of of Children with Genetic Conditions
  • Planting the Seeds of Self-Advocacy in your Child
  • Parent Group Spotlight: Autism Society of Oregon
  • Our Health Information Resource Pick of the Month: Safe and Sound: Toolkit for Caregivers
  • Special Event: Kathie Snow "Disability is Natural" 1/23/2014
  • Our parent partners send you their best wishes and tips for the holidays!
  • Need Information About your Child's Medications?

 

  • Questions about Genetics? Ask an Expert
  • Emergency Preparedness and Children with Disabilities
  • Communicating with your Doctor quickly and clearly
  • Portland State University's Autism Diagnosis Project
  • Moving from a Pediatrician to Adult Health Care
  • Getting to Know the ISP and PCP Process

 

 

  • Flu & Kids with Special Health Needs
  • Make Your Child's Emergency Plan
  • Free Family Pocket Guide by Family Voices
  • No More "R" Word
  • Free Resources for Families!
  • Facts & Myths about the Affordable Care Act
  • Congrats to Tami Montemayor, Oregon's New Family Scholar!
  • Welcome F2F's New Parent Liaison: Signe Miller!

 

 

  • OR F2F HIC Activities: Tip Sheets and Regional Family Gatherings
  • Preventive health services covered by most health insurance plans in 2014!
  • Information about Obamacare (the Affordable Care Act)
  • Upcoming parent trainings and conferences
  • Your Child's Medical Home
  • Chronic Illness and Mental Health

 

 

  • A useful tool to help coordinate your child's "team"
  • Parent Association Spotlight: Down Syndrome
  • Great essay written by a parent, directed to the many home visitors in her child's life
  • Help for treatment of children with mental illness
  • Considerations for a successful healthcare transition
  • Netbuddy.org: new favorite international website for parents!
  • OR F2F HIC continues the work!
  • Can a service or companion animal help your child?
  • Share your advocacy story story!
  • Program Spotlight: Community Connections Network
  • Is your child a "wanderer"? Let your local law enforcement know
  • Don't forget well-child visits for your child with special needs

 

 

  • Upcoming F2F Regional Family Gatherings
  • Children's Artwork Contest
  • Scholarships Available for ADHD Parent to Parent Training
  • Parent Group Spotlight: Achondroplasia
  • New Phone and Email Support Group Meetings
  • FACT Parent Mentor Program
  • New Tool for Families: Document Your Health History

 

  • Online Speech Therapy
  • Did Insurance Deny Medical Equipment for Your Child?
  • Parent Group Spotlight: Eosoinophilic Disorders
  • Doernbecher Children's Hospital MD 4KIDS Smart Phone App
  • Safety Resources for Your Child with Special Needs
  • Madisons Foundation for Families of Children with Rare Illnesses
  • Seeking Story Submissions from Mothers of Children with Special Needs

 

 

  • What to do when insurance won't pay
  • Transition issues to consider when your child turns 18
  • Rare Disease Day
  • Your child's medication
  • Information about School-Based Health Centers (SBHCs)
  • Disability Caregiving Can Be Health Hazard, Study Finds

 

 

  • Insurance updates for children with special health needs
  • Guide to psychotropics medications for youth
  • Children with special health needs and the flu
  • Support groups around Oregon
  • Angel Flight West: Free non-emergency air travel to children and adults with serious medical conditions
  • Help for parents navigating the special education system

 

 

  • Information about child safety and low cost safety products
  • Are you seeking reliable information about your child's diagnosis? Check out the numerous parent-led foundations that were founded by parents for parents.
  • Tips and Suggestions for Family Caregivers
  • What to consider after your child's hospitalization to ensure a smooth transition
  • F2F Regional Gatherings in 2013
  • Parents' Wisdom: Parents share advice about keeping track of their child's meetings, appointments, prescriptions, etc.

 

 

  • Introduction to our parent partners
  • Low cost Internet offered by Comcast: Are you eligible?
  • Information about "My Shared Care Plan"
  • Are you moving to another state? OR F2F HIC can coach you before the move!
  • UNIQUE: A resource for parents of children with rare chromosome disorders
  • Does your child have the Oregon Health Plan (OHP)? You may qualify for reimbursements for your travel to OHSU!
  • Parent's Wisdom: Parents share advice about dealing with health plans

 

 

  • Information about Genetic Consultation Services
  • How to develop a Care Notebook
  • Our favorite Parent Newsletters
  • Upcoming conference: Shoulder to Shoulder 2012
  • New monthly feature: Parents' Wisdom, families share their advice
  • Should your child participate in a clinical trial?
  • EASA: Mental health resource for Oregon youth experiencing early signs of pyschosis.

 

 

  • Getting you the Conference! Tips for parents, along with upcoming conferences and events around Oregon
  • Information about newborn screening
  • Tips for a successful office visit for your child
  • How to keep children who are prone to wandering, safe
  • What to consider when signing a medical release form

 

 

  • Important changes in Oregon Health Care: Coordinate Care Organization (CCO)
  • Information about the Affordable Care Act
  • Health care transition: When your child is too old for the pediatrician... what next?
  • Scholarships and programs for YSHN transitioning to college or work
  • Travel tips for CYSHN
  • OR F2F begins the second year of outreach to families!

 

 

  • Considering applying for Supplemental Security Income (SSI)? Find information in our June
  • The Oregon Poison Center
  • The OR F2F HIC can help parents communicate more effectively with their child's physician (or office staff), insurance companies, and/or health plans.
  • OR F2F HIC's partnership with the Swindells Child Disability Centers in Hood River, Newport, Medford, Salem and Portland.
  • Free help with insurance questions or complaints
  • CaringBridge, a free online program that helps families keep connected with friends and extended family during a health crisis.

 

  • Nuestro primer boletín de noticias todo en Español./Our first newsletter all in Spanish.

 

  • Algunos Recursos en Español: OR F2F HIC's first issue that highlights resources for Spanish speaking families of children and youth with special health needs
  • In April and May, we will be hosting gatherings for families of children with special health, developmental, or behavioral needs. Join us!
  • Lists of camps and other recreational programs for your child are available courtesy of Shriners Hospital for Children- Portland
  • Parents voices are needed! The Oregon Health Insurance Exchange Corporation is seeking input from Oregon families of a child with special physical, developmental, or behavior needs
  • Introduction to our parent partners and Family Navigators throughout the state
  • The Oregon Post Adoption Resource Center provides services for adopted children with special needs

 

  • Resources for keeping children with special needs safe
  • Information about getting very low cost health care at federally-funded (community) health centers
  • Youth Transition Program, helping youth with disabilities prepare for employment
  • GEMSS (Genetic Education Materials for School Success) has materials for parents of children with genetic conditions to share with teachers and assistants

 

  • OR F2F HIC's insurance issue: upcoming webinar information about navigating the insurance maze for parents of children with special health care needs
  • The Oregon Healthy Kids Program is dedicated to ensuring every child and teen has access to affordable health insurance
  • Oregon's Family Health Insurance Assistance Program (FHIAP), more help for families to afford their child's health insurance

 

  • Our January issue spolights the CaCoon program, services provided by public health nurses with extensive training and experience in special needs and complex health conditions
  • OHSU's LEND program (Leadership Education in Neurodevelopmental and Related Disabilities)
  • Navigation Map for Children with Autism Spectrum Disorder
  • Upcoming webinar and training information

 

  • Issue 2 focuses on the Affordable Care Act
  • Provides information about OHSU's free library services
  • Explains the Oregon Prescription Drug Program, a program helping families afford high-priced prescriptions

 

  • Introduction and information about the OR F2F HIC

 

The Oregon Family to Family Health Information Center is affiliated with the Oregon Center for Children and Youth with Special Health Needs, Oregon Health & Science University, and supported by the Health Resources and Services Administration (HRSA) of the US Department of Health and Human Services (HHS). (Grant #H84MC21658/Family Professional Partnership/$95,700). This information, content and conclusions are those of the author(s) and should not be construed as the official position or policy of, nor should any endorsements be inferred by, HRSA< HHS, the US Government, or OHSU.

 

Copyright © 2011 Oregon Family to Family Health Information Center